|We offer many programs, services and educational programs for individuals with memory loss and their families as well as care partners and community members. Click on the link below that best fits your needs....|
The Alzheimer's Association Helpline operates 24 hours a day, seven days a week, in 140 languages. Our staff is highly trained and knowledgeable about all aspects of Alzheimer’s disease. Call us if you have questions about:
- Alzheimer’s disease or memory loss, medications and treatment options, brain health and care options
- How the Association can help you
- Caregiving tips and respite care options
- Services available in your community and referrals
You can also call us for emotional support –– as often as you need. We know that living with Alzheimer’s can be overwhelming at times. Remember, we are here for you –– all day, every day.
If you prefer, send us a message at firstname.lastname@example.org. We check the e-mail box daily and will respond to your inquiry within 48 hours.
Families and care partners have many questions and concerns about Alzheimer's disease and often need assistance finding and utilizing community resources. The Heart of America Chapter offers individual and family care planning. Our professional staff is dedicated to helping people navigate through the difficult decisions and uncertainties people with Alzheimer's and their families face at every stage of the disease. We can provide care consultation services to you by telephone, email or in person. These include:
- Assessment of needs
- Assistance with planning and problem solving
- Supportive listening
More than 30 Heart of America Chapter support groups provide a consistent and caring place for group members to discuss the challenges and joys of caregiving. Group members share their feelings and find emotional support as well as exchange information and educate themselves about Alzheimer's disease and other dementias. Support group members bring new ideas to the table, learn about local and Association resources, share new ways of coping, boost each other's energy, and help build confidence. If you are a caregiver for a person with dementia, join a support group; you will benefit and help others. Find a support group.
The Breakfast Clubs are hometown support experiences where people share food and gather in a safe environment to discuss their experiences. The Heart of America Breakfast Clubs are listed below.
Bourbon County, KS
Mercy Hospital - Xavier Room
401 Woodland Hills Blvd.
Fort Scott, KS 66701
John von Wedell
620.421.6550, ext 1794
3rd Wednesday of the month at 9:00 a.m.
Crawford County, KS
1st United Methodist Church
415 N. Pine
Pittsburg, KS 66762
John von Wedell
620.421.6550, ext 1794
3rd Thursday of the month at 9:00 a.m.
Kansas City, MO
Research Medical Center, Meeting Room 3
2316 E. Meyer Blvd
Kansas City, MO 64132
2nd Saturday of the month at 9:30 a.m.
Labette County, KS
Country Mart Deli
2020 Main Street
Parsons, KS 67357
John von Wedell
620.421.6550, ext 1794
1st Thursday of the month at 9:00 a.m.
Neosho County, KS
Memorial Building - Alliance Room
101 S. Lincoln
Chanute, KS 66720
John von Wedell
620.421.6550, ext 1794
1st Wednesday of the month at 9:00 a.m.
The Kansas Dementia Bridge Project provides dementia crisis support to individuals with a dementia who are experiencing neuropsychiatric symtoms of dementia, such as: depression, wandering, resistance to daily care, sleep disturbance, physical aggression, etc. Our staff assist with dementia assessment, disease education, care plan recommendations, resource/treatment navigation, support, and follow-up. The Bridge Project serves individuals residing in any setting (hospitals, homes, facilities, etc.). The Kansas Bridge Project is a partnership between the Kansas Area Agencies on Aging and the Alzheimer's Association - Heart of America Chapter. For more information on the Kansas Bridge Project, contact Michelle Niedens at email@example.com or 800.272.3900.
The Alzheimer’s Association message boards and chat rooms provide an online community for persons with Alzheimer's, caregivers and care providers. Our message boards have thousands of registered members from around the United States and thousands more who refer to the stories and information that is available 24 hours a day.
This innovative art program provides persons with Alzheimer's disease with a means of creative expression. Experienced volunteer artists work weekly with groups in assisted living facilities, nursing homes and adult day programs. Read more about Memories in the Making©.
Approximately four times a year, the Heart of America Chapter partners with volunteer area artists, high school artists, and nursing home facilities to create a pleasing wall mural for late stage dementia patients who spend the majority of time in their rooms. The mural is typically based on some aspect of the person's life: a familiar scene, a countryside, or a special place where fond memories may reside. See Memory Room murals.
The Heart of America Chapter offers regularly scheduled classes designed to provide needed information to families of those with Alzheimer's disease and other dementias including understanding disease process, coping strategies, legal and financial issues, and information to facilitate caregiving. Below is a list of educational offerings for caregivers. If you have any questions about caregiver education programs, contact Kelly Jones at 913.831.3888 or firstname.lastname@example.org.
Building Caregiver Confidence
An opportunity for family caregivers and friends to increase their understanding of Alzheimer's disease and related dementias and to learn caregiving approaches..
Caring for someone with Alzheimer's disease is often accompanied by frustration and depression. This program addresses ways to manage the stress of caregiving.
15th Annual Defining Hope Conference
Alzheimer's disease is complicated and caring for someone with the disease can be viewed uniquely among different cultures. Unrecognized cultural influences may present barriers in accessing needed supports and assistance. This program addresses Alzheimer's related issues in diverse populations and potential ways to adapt services to better serve all who face this disease.
Driving and Dementia
A discussion about having the conversation, planning ahead, and signs of unsafe driving.
A 6-session course focusing on some of the most common topics around caring for someone with Alzheimer's disease or other dementias. Individuals are welcome to come for whichever topics are of concern.
Part I: "What can I expect?" - An overview of Alzheimer's disease including diagnosis, stages and family experiences.
Part II: "I don't need any help" - A discussion of managing activities of daily living including resistance, provision of care and other issues associated with bathing, toileting, dressing, taking medication and feeding.
Part 3: "He just sits around all day" - Explores the role of activities and structure for the person with Alzheimer's disease. Suggestions on activities and option to maximize strengths.
Part 4: "Is she on too many medications?" - The concerns and appropriate benefits of commonly prescribed medications in the care of the person with Alzheimer's disease.
Part 5: "I can't do this anymore" - the dilemma around the placement decision. Covers options, resources and the decision making process.
Part 6: "I should, I ought, I have to" - A video and discussion of the guilt that typically goes along with the role of the caregiver.
Finding Purpose in Advocacy
This 3-part education and support series looks at unique features of grief for families with an individual who has dementia, common areas where one can get stuck and exploring healthy ways to address those areas.
A discussion on the prevelance of wandering, risk factors and reasons for wandering behavior, wandering risk reduction interventions, and what to do if someone is lost.
This session explores the various legal concerns and needs that arise throughout the course of the disease. Issues include durable power of attorney, guardianship, conservatorship, patient rights, division of assets and living will.
Let's Talk About Dementia (Offered in English and Spanish)
This program provides information on detection, causes and risk factors, stages of the disease, treatment, and helpful caregiver tips relating to communication, behaviors, and feelings.
So You Have Been Newly Diagnosed with Alzheimer's: The First Steps
A discussion about what early stage Alzheimer's disease means and management strategies.
Sexuality, Intimacy, and Alzheimer's
Learn how dementia may affect the sexual feelings and needs for intimacy in people with dementia and their partners.
The Library is located in the main office and open Monday through Friday from 8:30 a.m. to 5:00 p.m. to provide books, brochures, videos and other resources on Alzheimer's for loan or purchase (click here for a list of resources available to purchase). All offices have access to these resources and also offer a variety of informative material at their locations. For more information about available resources, please call 913.831.3888.
MedicAlert+Safe Return is a national patient registry for the memory impaired. This program was developed by the Alzheimer's Association to respond to the problem of wandering. The Safe Return program coordinates information on program participants, caregivers, and emergency personnel in order to provide a system to enable others to locate, identify and return missing persons with Alzheimer's disease and related disorders who wander and become lost. Enroll in Safe Return.
Comfort Zone: A New Tracking Device for SomePeace of Mind
Alzheimer's Association Comfort Zone allows family members to monitor a person's location, while the individual with Alzheimer's can maintain their independence and enjoy the emotional security of familiar routines and surroudings. Learn more.
TrialMatch is a free service that makes it easy for individuals with Alzheimer's, caregivers, families and physicians to locate clinical trials based on personal criteria (diagnosis, stage of disease) and location.This is an exciting time for Alzheimer's research. More than 100 research studies pertaining to Alzheimer's disease and related dementias are underway and volunteers for these studies are needed. TrialMatch lets you search these trials quickly and esasily. The following link takes you to the national website. To return to the Heart of America Chapter website, click the "In My Community" tab at the top of the national website. Learn More About TrialMatch
Memory Matters, the Chapter newsletter, includes articles on caregiving strategies, research, public advocacy and the calendar of Chapter events. Visit our Newsletter Archive to download current or past newsletters in Adobe Acrobat format. Or, sign up to receive the newsletter in hard copy or email format, please call 913.831.3888.
Neuropsychiatric Symptoms of Dementia: A Visual Guide to Response Considerations by Michelle Niedens, LSCSW. This user-friendly guide was developed by the Alzheimer's Association Heart of America Chapter Director of Education and Public Policy and has been reviewed by dementia experts around the country. In a decision tree format, it provides evidence-based intervention suggestions for a wide range of neuropsychiatric challenges, such as wandering, depression, and resistance to daily care.
The guide is designed to prop up in a table-tent fashion so that the user can flip from page to page.
The cost of the guide is $20. If you are interested in purchasing this guide, please contact Carol at the Main Chapter office, 913.831.3888.
Download a pdf version of this guide.
Alzheimer’s disease and other disorders that cause dementia know no boundaries. Many individuals and families in ethnic and cultural minority groups are in need of solid information about Alzheimer’s disease and health resources.