The Longest Day 2018
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Sue's story
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My mom has late-stage Alzheimer’s. I share her caregiving with my sister. My parents have been married almost 58 years, and my dad was her sole caregiver until he suffered a stroke in early November. My mom was such an amazing woman, and it breaks my heart to see what this disease has done, not only to her, but also to my dad.

It Took Her Away

The woman who taught me everything
Is here but not the same
She's disappearing before my eyes
It's a cruel and sadistic game

She taught me how to cook and sew
She took such good care of me
Now I have to feed her like a child
How could this have come to be?

I console her when she's sobbing
I try to distract her with a toy
And every exhausting moment
Is filled with such bittersweet joy

My Mom is here but also gone
And at times she's very aware
That always catches me by surprise
To know she's behind that vacant stare

I watch her as she sleeping
And try to catch my broken breath
Because if I let the sadness over take me
I'll never last until her death

I try to find the humor
In the most ridiculous and unfunny stuff
If I don't laugh I will surely crumble
I'm thankful she taught me how to be so tough

This woman who made our house a home
Doesn't recognize things or places
She’s frightened and scared all the time
And soon won't know our faces

My father is amazing
The love he has for her's so true
Losing her like this just breaks his heart
He truly meant it when he said "I do"

He shows me every single day
What unconditional love is all about
Alzheimer's is robbing me of my Mom
It makes me want to scream and shout

I use to call her to discuss my kids
And tell her how they are
Now she thinks that they are babies again
Her mind has traveled so far

I wonder what will happen next
As I lay in my childhood bed
Remembering all her forgotten thoughts
And the things that will never be said

The woman who taught me to walk and speak
Will soon not know one from the other
Because of this awful disease
Now she's the child - and I the mother.


Alzheimer's Association

Our vision: A world without Alzheimer's disease®.
Formed in 1980, the Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research.