My mother has Alzheimer's disease. Medicaid provides her with a visiting caregiver for 7 hours a day. That cuts my work hours to working part-time, including commuting time. Additionally, when the visiting caregiver can't make it to work for one reason or another, that means I miss a day's work, too.
I am at their mercy, and if I don't work, I don't get paid. There is enough stress taking care of an Alzheimer's patient, but it has gotten to the point where I cannot keep up with all the bills and running a household. My mother moved in with me 5 1/2 years ago, and at that time, I had a full-time job. And a few years later, she developed dementia after a major stroke. Later, of course, it became Alzheimer's disease.
I wish I could just stay at home and take care of her myself, but that is impossible. I love spending time with her, but all we can do is stay at home because there is not enough money to even take her out to lunch occasionally.
What do people do? Is there anywhere to turn for financial assistance in caring for the Alzheimer patient?
I have so many more questions in my mind, but it seems there are no answers to any of them.