I cared for my Alzheimer's stricken mother for seven years until her death. I had absolutely no knowledge of Alzheimer's disease. I was in complete denial when I began my caregiving trek, as I am convinced most family caregivers are. Somehow, I managed to care for my mother until she became completely insane and passed over.
Only after her demise did I discover just how much damage had been done to my health, my family and our financial situation. I struggled for four years to write the story of my denial, fears and day-to-day caregiving frustrations. I wrote it for only one reason: to reach out and give a helping hand to people just like me.
I have years of experience with this disease, and I desperately want to reach out and offer it to those who need it. My ultimate goal remains that through the experiences I encountered, and the words in my book, I will somehow touch people, open their hearts and eyes and contribute some sort of peace to the gut-wrenching effects of Alzheimer's and caregiving.
I believe that somewhere in each of our stories as caregivers, there lies a vital clue to Alzheimer's. We MUST pull together, tell our stories and help to contribute in finding the answers. They are there somewhere.
Edi wrote the book, "The Price of a Promise: An Alzheimer's Story."