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Headlines in this issue:
A recently released report by the Alzheimer’s Association examines quality care through the eyes of people living with the disease. A Guide to Quality Care from the Perspectives of People Living with Dementia summarizes survey findings and interviews from individuals living in the early stage of Alzheimer’s or other dementias. It offers insights into how those most affected by the disease view quality care and what they want from care providers and caregivers during their difficult journey.
The new guide synthesizes feedback from survey respondents, as well as additional information obtained from individuals living with dementia throughout the 10 years of the Alzheimer’s Association Early-Stage Initiative. Important care considerations identified by those living with early-stage Alzheimer’s, included:
A complete list of these care priorities can be found in the report.
The new report is a companion piece to the recently released Alzheimer’s Association 2018 Dementia Care Practice Recommendations which outline 56 recommendation’s across 10 content areas for professional care providers who work with individuals living with dementia and their families in long-term and community-based care settings. They were developed by 27 dementia care experts convened by the Alzheimer’s Association and are based on a comprehensive review of current evidence, best practice, and expert opinion. The recommendations seek to better define quality care across all care settings, and throughout the disease course.
The RAISE (Recognize, Assist, Include, Support, and Engage) Family Care Act signed into law last month marks a milestone victory for the more than 5 million people living with Alzheimer’s and their 15 million unpaid caregivers. The new law requires HHS to develop, maintain, and update an integrated national strategy to support family caregivers. This strategy will help identify actions that communities, health providers, employers and others can take to support family caregivers, including:
The need for such strategies to assist Alzheimer’s caregivers is critical. Consider these facts:
The RAISE Family Caregivers Act also directs HHS to create a Family Caregiving Advisory Council, similar to the National Plan to Address Alzheimer’s Disease Advisory Council. Both the advisory council and The RAISE Family Caregivers Act were closely modeled after the National Alzheimer’s Project Act. The Alzheimer’s Association and AIM have been strong advocates for the RAISE Family Caregivers Act since its introduction.
Winter can bring about additional challenges for people living with Alzheimer’s and their caregivers. Snow, extreme temperatures and early darkness are just of the season-related changes caregivers need to navigate when caring for someone living with Alzheimer’s.
“Cold weather, snow and ice are a potentially dangerous mix for people living with Alzheimer’s” said Monica Moreno, Senior Director, Care and Support, Alzheimer’s Association. “Alzheimer’s often affects a person’s balance or decision-making, so caregivers need to be extra diligent about protecting their loved ones from falls or exposure to cold temperatures.”
The Alzheimer’s Association offers these winter safety tips for those living with Alzheimer’s:
Additional safety tips for Alzheimer’s caregivers can be found by visiting ALZ.org.