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Alzheimer’s Association Selects Local Kearney Alzheimer’s Advocate to Esteemed Spokesperson Program

Alzheimer’s Association Selects Local Kearney Alzheimer’s Advocate to Esteemed Spokesperson Program
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July 2, 2018
Email: echentland@alz.org
Media Line: 402.739.8637
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Kearney, NE – July 2, 2018 – The Alzheimer’s Association is excited to announce that local Kearney resident, Susan Bigg, has been selected as one of eleven total spokespersons for the esteemed Purple Profiles of Courage Program. Purple Profiles of Courage participants are members of various communities in Nebraska who are devoted to advancing the mission of the Alzheimer’s Association. These participants offer inspiration to the public by speaking publicly about their disease experiences, engaging in media interviews, and participating actively in local signature events with the Alzheimer’s Association. The Purple Profiles of Courage participants receive comprehensive training to advocate for advancements in the field and promote free services offered to families affected by Alzheimer’s. Last year, Marci Benson served as an advocate for the Purple Profiles of Courage in the Kearney area.  

Bigg works to advance research for Alzheimer’s by taking part in signature events hosted by the Alzheimer’s Associations including the Walk to End Alzheimer’s in Kearney, attending the Alzheimer’s Association AIM Advocacy Forum in DC, and promoting the free resources offered by the Alzheimer’s Association. Susan’s journey with Alzheimer’s began 22 years ago when her husband Stan was diagnosed, since then, she has worked with the Alzheimer’s Association to learn more about the disease and advocate for a cure.

Susan says, "There are no survivors! Join the fight to find a cure for today's generation and future generations. A cure will not help my husband, but it could help my daughter, granddaughter and future generations and families of loved ones with Alzheimer's.”

Moving forward, spokespersons from across the state will represent various connections to Alzheimer’s disease, including having lost someone to Alzheimer’s, currently caring for a loved one with Alzheimer’s, living with the disease, or having a vision of a world without Alzheimer’s. These spokespersons will engage in sharing their story on social media, blogs, media interviews, and various speaking engagements through signature events such as the Walk to End Alzheimer’s, the Growing Hope Gala, and The Longest Day.

Elizabeth Chentland, Director of Communications for the Alzheimer’s Association Nebraska Chapter, looks forward to helping Nebraskans better understand Alzheimer’s through the voices of people with extensive personal experience. 

“We know that this disease affects families so deeply. Sometimes, the disease feels overwhelming to families. Being able to learn from a peer with disease expertise who is willing to share their own story becomes critical in increasing awareness about the disease and providing information about care, support, and research opportunities. It also helps generate greater participation in Alzheimer’s Association events.”

In the United States, there are over 5.7 million people with Alzheimer’s and that is projected to grow to as many as 16 million people in 2050.  In Nebraska alone, there are 34,000 people over the age of 65 living with the disease and they are supported by 82,000 caregivers across the state. Alzheimer’s is the sixth leading cause of death in the United States, leading to 598 deaths in Nebraska in 2017. 
 

Alzheimer's Association

The Alzheimer's Association is the world's leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer's. For more information, visit www.alz.org.

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