2023 Advancing Research on Care and Outcome Measurements (ARCOM)
Evaluating impact of a pragmatic preference congruent care measure
Can assessing the preferences and needs of individuals living with dementia improve their overall well-being?
Kimberly S Van Haitsma, Ph.D.
Pennsylvania State University
University Park, PA - United States
Background
Individuals with Alzheimer’s and other dementias living in long-term care facilities are at risk of developing mood and behavioral changes including depression, stress, anxiety, and loneliness. Studies have shown that focusing on preference-based care for individuals living with dementia can reduce some of these symptoms by allowing individuals to engage in their preferred activities. However, the mechanisms by which preference-based care improves the well-being of individuals living with dementia in long-term care facilities are not well understood.
Research Plan
Dr. Kimberly Van Haitsma and colleagues will study the impact of preference-based care on well-being for long-term care residents living with dementia. First, to evaluate the impact of activity engagement on well-being, the researchers will associate behavioral symptoms and cognitive ability with activity attendance for individuals living with dementia in long-term care facilities. Then the team will evaluate how attending one’s preferred activities impacts each individual’s behavioral symptoms and cognitive ability.
Impact
This project could shed new light on how well the everyday needs and preferences of individuals living with dementia are assessed. It could also lead to tools that improve the well-being and quality of life for people living with dementia in long-term care facilities.
The ARCOM Grant Program was developed jointly with Leveraging an Interdisciplinary Consortium to Improve Care and Outcomes for Persons Living With Alzheimer’s and Dementia (LINC-AD).