Paul & Sarah Hornback live in Hodgenville, Kentucky and became involved with the Alzheimer’s Association soon after Paul was first diagnosed with younger onset Alzheimer’s disease in 2010.
In what ways do you volunteer?
We volunteer with the Association through the Walk to End Alzheimer’s, the Longest Day, through speaking engagements and advocacy. We began a Memory Café in Hodgenville in 2014 and serve on the Lincoln Trail Walk to End Alzheimer’s planning committee. We have attended the national Advocacy Forum in Washington D.C. multiple times and are also members of the Alzheimer’s Congressional Team for Congressman Brett Guthrie. Additionally, Paul was selected as a national Early Stage Advisor in 2015 and was elected to the national Board of Directors for the Alzheimer’s Association in 2016. We have been keynote speakers at national leadership and local fundraising events and Paul has been featured in numerous state and national videos and publications.
Why do you support the Association?
We are passionate about finding a cure for this disease and increasing support for families who are facing it. While the disease has progressed very slowly for Paul, Sarah’s mother is in the late stages of it so we worry about what the future may hold for our children and grandchildren as both sides now have a family history. Paul’s grandmother, father, and three uncles have died from the disease.
What impact do you feel your work with the Alzheimer’s Association has on the community?
Paul has been very active in clinical trials he found through the Association’s TrialMatch service and speaks frequently about the need for volunteers with the disease to participate. Paul also writes a daily blog to encourage people who are going through the challenges of Alzheimer’s (faithfulfoggyliving.com). He has published one book of daily devotions, God Still Remembers Me, and plans to publish another book in 2019, The Purple Brick Road.
What else are you involved in within your community?
Both Paul and Sarah volunteer with a variety of church and community projects including the Hope Food Pantry, a weekly senior meal delivery, a genealogy library, and a local community mental health board.
Why would you encourage others to support the Association?
We encourage others to participate in programs through the Association because we know families cannot get through this alone. The support, education, friendships, and encouragement we have received through the Association and the people we have met through the Association have been vital to us as we work as warriors against this disease.