In 2017, the National Institutes of Health hosted its first National Research Summit on Care, Services, and Supports for Persons With Dementia and Their Caregivers to generate recommendations that could improve treatment. Among them was the development of better methods for measuring person-centered outcomes.
This recommendation paired well with the efforts of the Alzheimer’s Association, which was preparing to release its 2018 Dementia Care Practice Recommendations, organized around a nine-domain model of dementia care. For each domain, a group of experts reviewed existing literature to develop evidence-based recommendations. Once recommendations were established, the experts shifted their focus to critiquing existing tools and outcome measures in each domain.
Recognizing the significance of the group’s work and its alignment with the 2017 summit recommendation, the Alzheimer’s Association proposed to the National Institutes of Health a five-year interdisciplinary consortium composed of those experts as well as individuals with dementia, caregivers and care providers.
With support from the Alzheimer’s Association and funding from National Institutes of Health grant 1R24AG065185, LINC-AD will focus on three major objectives to usher in the next phase of psychosocial research in Alzheimer’s disease and related disorders, ultimately leading to improved care and outcomes.
As a growing consortium, LINC-AD includes researchers, persons living with dementia, family care partners, and long-term and community-based providers.
Sign-up is free. As an affiliate, junior psychosocial researchers in dementia care can connect with other researchers in the field, including learning about grant opportunities, conferences and virtual webinars.
Research reported on this website is supported by the National Institutes of Health under Award Number 1R24AG065185. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.