In 2017, the National Institutes of Health hosted its first National Research Summit on Care, Services, and Supports for Persons With Dementia and Their Caregivers to generate recommendations that could improve treatment. Among them was the development of better methods for measuring person-centered outcomes.
This recommendation paired well with the efforts of the Alzheimer’s Association, which was preparing to release its 2018 Dementia Care Practice Recommendations, organized around a nine-domain model of dementia care. For each domain, a group of experts reviewed existing literature to develop evidence-based recommendations. Once recommendations were established, the experts shifted their focus to critiquing existing tools and outcome measures in each domain.
Recognizing the significance of the group’s work and its alignment with the 2017 summit recommendation, the Alzheimer’s Association proposed to the National Institutes of Health a five-year interdisciplinary consortium composed of those experts as well as individuals with dementia, caregivers and care providers.
With support from the Alzheimer’s Association and funding from National Institutes of Health grant 1R24AG065185, LINC-AD will focus on three major objectives to usher in the next phase of psychosocial research in Alzheimer’s disease and related disorders, ultimately leading to improved care and outcomes.
As a growing consortium, LINC-AD includes researchers, persons living with dementia, family care partners, and long-term and community-based providers.
As a part of the LINC-AD network, you will connect with other psychosocial researchers in the dementia care field and gain access to a variety of opportunities, including funding opportunities, calls for papers, webinars, conference events and networking opportunities.