Opportunities

LINC-AD Special Issue on Psychosocial Measure in Alzheimer’s & Dementia: Translational Research & Clinical Interventions (TRCI)

This special issue focuses on psychosocial measures and will include papers that critically evaluate existing measures and gaps in the nine areas of the Alzheimer’s Association Dementia Care Practice Recommendations. View the special issue.

Calls for Papers

Alzheimer’s & Dementia; Translational Research & Clinical Interventions (TRCI) Special Collection: Key Issues in Measurement

Papers are being solicited related to Key Issues in Measurement, to be included in the Translational Research & Clinical Interventions (TRCI) Special Collection: Measurement to Improve Care and Outcomes for individuals living with dementia and their caregivers. These papers will complement a foundation of papers, published or in development, relating to the nine areas of the Alzheimer’s Association Dementia Care Practice Recommendations. Call for Papers: Key Issues in Measurement.

Grant Funding

Alzheimer’s Association International Grants Program

Special RFA: Advancing Research on Care and Outcome Measures (ARCOM)
Note: Applications are closed for 2021. Please check back for information on the 2022 program.

The ARCOM funding program (Advancing Research on Care and Outcome Measures) aims to address significant gaps in care and outcome measurement, and provide an opportunity to advance research so that care providers have the tools to implement evidence-based practices (measures to guide care provision) and achieve desired outcomes (measures to assess outcomes). Work to be funded through ARCOM aims to directly advance research projects that are developing and/or validating previously developed measures of care and outcomes where measurement gaps exist, and evaluating the use of measures in improving care and outcomes across diverse and underrepresented populations and stages of dementia, and in various settings. View currently funded ARCOM studies.

Areas of interest include but are not limited to:

  • Outcome measurement, such as the development of new person-centered outcome measures that foster a constructive balance between strength and deficit assessment (e.g., measures related to engagement, activity involvement, resilience, well-being, and other strengths-based areas).
  • Care measurement, such as the development of measures to guide care that is known to result in positive outcomes (e.g., checklists of evidence-based care processes to promote independence in activities of daily living or decrease behavioral expressions).
  • Application of measurement, such as use of measures in new settings, with new populations, or in novel applications (e.g., concurrent use of biomarkers and psychosocial measures; use of new technologies to assist with observational measures).
  • Evaluation of measurement in intervention research (e.g., examining use and sensitivity of measures in actual practice).

Events

Alzheimer’s Association Interdisciplinary Summer Research Institute (AA-ISRI)
Apply to attend The Alzheimer’s Association Interdisciplinary Summer Research Institute (AA-ISRI), taking place August 2022, in Chicago, Ill. This is an immersive, no-cost opportunity for early career researchers in psychosocial care and public health to launch a career in dementia science and accelerate breakthroughs in the field. Twenty-four applicants will be selected for this exclusive experience. Applications will open in late fall 2021.

Collaborations (LINC-ADges)

NIA IMPACT Collaboratory
A collaboratory focused on building the nation’s capacity to conduct pragmatic clinical trials of interventions embedded within health care systems for people living with dementia and their care partners.

Learn how LINC-AD and IMPACT Collaboratory intersect (pdf)

Dr. Sheryl Zimmerman presents on LINC-AD for IMPACT Collaboratory Grand Rounds
Webinar covering pragmatic and relevant outcomes for Alzheimer’s disease (AD) and Alzheimer’s disease-related dementias (ADRD) embedded pragmatic clinical trials (ePCTs). Watch the webinar.

Dr. Sheryl Zimmerman presents on LINC-AD for IMPACT Collaboratory Podcast
Podcast continuing the Grand Rounds webinar conversation on finding pragmatic and relevant outcomes for AD/ADRD ePCTs. Listen to the podcast.

Dr. Sheryl Zimmerman authors an editorial titled, What Clinicians Need to Know About Measurement in JAMDA. Assess the article.

Transforming the Delivery of Dementia Care in U.S. Health Care Systems
A special issue of the Journal of the American Geriatrics Society (JAGS) from the National Institute on Aging IMbedded Pragmatic Alzheimer's Disease (AD) and AD‐Related Dementias (AD/ADRD) Clinical Trials (IMPACT) Collaboratory.

The EU Joint Programme — Neurodegenerative Disease Research (JPND) Research Report: Dementia Outcome Measures: Charting New Territory
A report for researchers across Europe engaged in psychosocial research in dementia care that highlights how social health affects how people with neurodegenerative disease adapt to and self-manage their condition.

WE-THRIVE
Worldwide Elements To Harmonize Research In long-term care liVing Environments (WE-THRIVE) is a global consortium of LTC researchers, including researchers from low- and middle-income countries (LMICs).

Decadal Survey of Behavioral and Social Science Research on Alzheimer's Disease and Alzheimer's Disease-Related Dementias
A survey focusing on developing a research agenda for the next decade in the behavioral and social sciences as it relates to Alzheimer’s disease and Alzheimer’s disease-related dementias.

Commissioned Review Papers
The Committee on Developing a Behavioral and Social Science Research Agenda on Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias (AD/ADRD) hosted a public workshop in Washington, D.C., as part of the study “Developing a Behavioral and Social Science Research Agenda on Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias” (Alzheimer’s Decadal). The workshop included six presentations by six authors of papers commissioned by the committee.

National Alzheimer’s and Dementia Resource Center (NADRC) Quality Assurance and Measures
A website that includes quality assurance and measures. The expertise of the Resource Center team is broad, with combined experience and knowledge related to a variety of topics including, dementia-capable systems, supportive services for people with dementia and caregivers, evidence-based caregiver interventions, behavioral interventions for people with dementia, data collection and reporting, and program evaluation.

National Alzheimer’s Project Act (NAPA)
An act established to build upon and leverage Health and Human Services (HSH) programs and other federal efforts to help change the trajectory of Alzheimer's disease and other dementias.

Advisory Council On Alzheimer's Research, Care, And Services Subcommittee Recommendations
An advisory council that makes recommendations to HHS for priority actions to expand, coordinate and condense programs in order to improve the health outcomes of people with AD/ADRD and reduce the financial burden of these conditions.

Alzheimer’s Association Resources

Alzheimer’s Association Research Activities
As the largest nonprofit funder of Alzheimer's research, the Association is committed to accelerating the global progress of new treatments, preventions and, ultimately, a cure.

The Alzheimer’s Association International Conference® (AAIC®)
This is the largest and most influential international meeting dedicated to advancing dementia science. Each year, AAIC convenes the world’s leading basic science and clinical researchers, next-generation investigators, clinicians and the care research community to share research discoveries that'll lead to methods of prevention and treatment and improvements in the diagnosis of Alzheimer’s disease.

The Alzheimer's Association International Research Grant Program
This program lies at the heart of our commitment to advance Alzheimer's research. Since awarding our first grants in 1982, the Association has grown into the largest private, nonprofit funder of Alzheimer's research. The Alzheimer's Association is currently investing $300 million in 920 active best-of-field projects in 45 countries, spanning six continents.

Alzheimer’s Association TrialMatch®
This service provides customized lists of clinical studies based on user-provided information. The free, easy-to-use platform allows individuals with Alzheimer’s, caregivers and healthy volunteers to see which studies are a good fit for them or for a family member. Search for studies, sign up for study updates, or connect with researcher teams.

Alzheimer’s & Dementia®: The Journal of the Alzheimer’s Association,
This is the leading peer-reviewed, monthly journal in Alzheimer’s and dementia. The Association also has two open-access companion journals.

Become a LINC-AD Affiliate

Sign-up is free. As an affiliate, junior psychosocial researchers in dementia care can connect with other researchers in the field, including learning about grant opportunities, conferences and virtual webinars.