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    Pennsylvania

    Pennsylvania

    Alzheimer’s disease is a growing public health crisis in Pennsylvania. The impact of Alzheimer’s is projected to rise, and the most recent data show:

    • 282,000 people aged 65 and older are living with Alzheimer’s in Pennsylvania.
    • 9.6% of people aged 45 and older have subjective cognitive decline.
    • 465,000 family caregivers bear the burden of the disease in Pennsylvania.
    • 822 million hours of unpaid care provided by Alzheimer’s caregivers.
    • $13.6 billion is the value of the unpaid care.
    • $4 billion is the cost of Alzheimer’s to the state Medicaid program.

    These numbers show that a public health approach is necessary to lessen the burden and enhance the quality of life for those living with cognitive impairment and their families.

    Learn more about Pennsylvania: Alzheimer’s Statistics (PDF), Cognitive Decline (PDF), Dementia Caregiving (PDF), Risk Factors (PDF), County-Level Alzheimer's Prevalence (PDF)

    Tribes in your state

    Use the HBI Road Map for American Indian and Alaska Native Peoples to start conversations with tribal leaders on public health actions that can be taken to support brain health and caregivers. Find tribal leaders and federally recognized tribes in your state: Tribal Leaders Directory.

    Public health spotlight

    Explore public health action against Alzheimer’s

    Learn more about areas essential to addressing Alzheimer's from a public health perspective.

    See Public Health Topics

    In October 2018, HR 969 was unanimously adopted in the Pennsylvania House of Representatives. HR 969 was a resolution urging the Pennsylvania Secretary of Health to designate Alzheimer's disease and related disorders as a public health issue. Since that time, in conjunction with Alzheimer’s and Brain Awareness Month in June, the Pennsylvania Department of Health has published communication throughout each year to increase awareness of Alzheimer’s, dementia and cognitive health to the general public.

    State plan overview

    In February 2013, Governor Tom Corbett issued Executive Order 2013-01 to establish the Pennsylvania Alzheimer’s Disease Planning Committee. Twenty-six members were appointed to the committee which included a Pennsylvanian living with Alzheimer’s disease, representatives of families and caregivers of persons living with and caring for individuals living with ADRD, the aging network, other state departments, providers from across the care continuum, leading researchers in pursuit of a cure and better care, and members of the legislature. Chaired by the Secretary of the Department of Aging, the Planning Committee gathered public input from across the state to inform their recommendations. The Pennsylvania State Plan for Alzheimer’s Disease and Related Disorders was published in February 2014. The Department of Aging is currently focused on the implementation of the state plan and hosts an Annual Alzheimer's Disease and Related Disorders Forum each fall.

    Resources for action

    State and local public health agencies around the country are taking action against Alzheimer’s by implementing the Healthy Brain Initiative: State and Local Road Map for Public Health, 2023–2027. Public health practitioners can learn by example and find resources to help guide their response below.

    Pennsylvania Implementation
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    Pennsylvania Resources
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    Issue:

    Risk Factors + Risk Reduction

    Alzheimer's AssociationFact Sheet: Subjective Cognitive Decline in Pennsylvania

    Caregivers + BRFSS

    Alzheimer's AssociationFact Sheet: Dementia Caregiving in Pennsylvania
    Alzheimer's Association Fact Sheet: Dementia Caregiving in Pennsylvania (2020)
    Centers for Disease Control and PreventionInfographic: Caregiving in Pennsylvania

    BRFSS + Cognitive Decline

    Alzheimer's AssociationFact Sheet: Cognitive Decline in Pennsylvania (2021)
    Alzheimer's AssociationFact Sheet: Subjective Cognitive Decline in Pennsylvania (2019)
    Centers for Disease Control and PreventionInfographic: Subjective Cognitive Decline in Pennsylvania (2019)
    Centers for Disease Control and PreventionInfographic: Subjective Cognitive Decline in Pennsylvania (2018) (2018)
    Alzheimer's AssociationFact Sheet: Cognitive Decline in Pennsylvania (2014)

    BRFSS + Caregivers

    Alzheimer's AssociationFact Sheet: Dementia Caregiving in Pennsylvania (2022)
    Alzheimer's AssociationFact Sheet: Dementia Caregiving in Pennsylvania (2015)
    Centers for Disease Control and PreventionInfographic: Caregiving in Pennsylvania (2015)

    Care and Advance Planning

    Centers for Disease Control and PreventionInfographic: Subjective Cognitive Decline in Pennsylvania
    Centers for Disease Control and PreventionInfographic: Subjective Cognitive Decline in Pennsylvania (2018)